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Health Consumer Advocacy and Support

This section is dedicated to HCOs and the patients they represent.  It provides an array of resources to help you understand the complexities of the medicine supply chain, regulation to reimbursement.

Health Consumer Organisations (HCOs) provide a powerful voice for patients across Australia. They are involved in disease education; provide help lines, emotional support, and access to treatment. They are also crucially engaged in discussions about the healthcare system. The scope of their work is expanding to include collaborations with a number of stakeholders, including pharmaceutical companies, on projects ranging from raising public awareness of specific diseases to facilitating participation in clinical trials of innovative medicines.

From an industry perspective HCOs can provide an invaluable perspective on the development of new, innovative treatments and their use in clinical practice.

This section is dedicated to HCOs and the patients they represent.  It provides an array of resources to help you understand the complexities of the medicine supply chain, regulation to reimbursement.

Working Together Guide

The ‘Working Together Guide’ is a joint collaboration between Medicines Australia and its member companies along with Healthcare Consumer Groups and Patient Advocacy Groups.  It is a practical guide of how industry and consumers can work together for the benefit of patients whilst upholding high standards of engagement.

Relationships with HCOs are well regulated through the Medicines Australia Code of Conduct, and all financial relationships are publicly disclosed as a requirement of the Code.

Responding to the challenge of COVID-19

Relevant and useful information on COVID-19 specifically for Health Consumer Organisations and patients can be found here.

We are in this together – everyone and every part of the Australian healthcare system and community has an essential role to play. It is imperative we work closely together now in a collaborative and organised way to help us get through these challenging times.

Continuity of Care Collaboration

The Continuity of Care Collaboration (made up of over 35 organisations) is a communication collaboration of Peak Bodies, Industry and Healthcare Organisations coming together to stress the importance for people to continue with monitoring their health status and conditions to ensure optimal long term health outcomes are achieved.  The CCC represents the broad healthcare ecosystem and is the first ever such collaboration.

The CCC is advocating for people to continue with their health management during the COVID-19 pandemic and preparing for the future.  The aim is to communicate consistently the importance of people to keep a close watch on their ongoing health care and maintenance, and to not allow the ongoing COVID-19 crisis to prevent this crucial healthcare activity.

Medicines Australia is a founding partner of the CCC, and the CCC has been nominated as a finalist for Best Public Health Initiative in the 2020 Prime Awards.

The CCC is advocating for people to continue with their health management during the COVID-19 pandemic.  The aim is to communicate consistently the importance of looking after your health, whether that is managing a chronic health condition, getting preventative screening tests or pathology tests, or seeking immediate treatment and care if you have urgent and/or new symptoms. 

Our objective for the #dontwaitmate campaign is to help people, patients and carers in Australia feel safe to continue to go and see their doctor, nurse, pharmacist, allied health professional and dentist, and to also not put of tests such as blood tests, cancer screening or x-rays and scans.

Your health is our priority.  There are measures in place to help people feel safe to access their health care needs remotely, such as Telehealth, e-prescribing of medicines, home delivery of medicines.  If people do need to physically go to a clinic or hospital, personal protective equipment, regular cleaning and distancing measures are all in place – it is all about patient safety.

Watch the #dontwaitmate video

The CCC have held a number of webinars on various topics. These webinars can be viewed here.

#DontWaitMate

Social and comms toolkit is available here in Zip format

Patient Voice Initiative

The Patient Voice Initiative (PVI) is a collaboration between patients (or health consumers), researchers and industry working towards improving the patient voice in the Australian healthcare system.  It provides a forum for collaboration and dialogue, purposeful initiatives to support patient involvement and provide tools and resources to help raise the patient voice.

Helpful Resources

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