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Tools and Resources

New website to improve value for PBAC consumer comments

The Pharmaceutical Benefits Scheme (PBS) is the main mechanism via which the Government subsidises the cost of medications used by the community. Medicines can only be included on the PBS if recommended for listing by the Pharmaceutical Benefits Advisory Committee (PBAC), an independent expert body. The PBAC evaluates applications for PBS subsidy and they take into account the clinical effectiveness, safety and cost effectiveness (value for money) of the medication compared to other available therapies.

The PBAC also considers consumer comments in addition to the clinical and economic information in support of their submission.  Consumer comments can be provided by the patient, carer, member of the public, health professional or member of a Health Consumer Organisation for consideration by the PBAC alongside the information submitted by the sponsor.

The Patient Voice Initiative has launched a new online resource to help patients and the wider community submit Consumer Comments to the PBAC that are more likely to inform PBAC’s advice to the Minister on listing medicines.  The new website guides users through the way PBAC works and the specifics of what patients know that may address gaps and uncertainties in the evidence being considered by the Committee.

New National Pain Services Directory

A new pain service directory has been developed by Painaustralia and may be useful for your patients experiencing pain, or their families and carers.  The Directory lists multidisciplinary Pain Clinics, Pain Management Services as well as pain practices and is available to the general public and as a guide to available pain services based on the International Association for the Study of Pain (IASP) criteria.  These services are guided by an understanding that pain is influenced by biomedical, psychological, and social/environmental factors, and treatment that is evidence-based and safe.

Advocacy Kit

An Information and Advocacy Toolkit for Health Consumer Organisations developed by The International Alliance of Patients Organizations (IAPO) provides HCOs with theory guidelines and tools to help advocate for a particular issue and get your voice heard.  IAPO is a global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world. It works with communities of patients to get their voices heard by all involved in healthcare. 

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